Participate in the Baby Brain Imaging and Behavior Study (Baby BIBS)

We are currently recruiting families for the study. To contact us to request information or enroll your baby, please fill out this form.

To learn more about the study please check out the “Our Study” tab.

To learn more about other studies examining autism or other neurodevelopmental disorders, please check out the UCLA Center for Autism Research and Treatment open research studies page.

TUBEROUS SCLEROSIS COMPLEX TRAVEL & LODGING PATIENT ASSISTANCE

ABOUT NORD AND HISTORY

The National Organization for rare Disorders (NORD) is an independent charity organization that focuses on the identification, treatment and cure, or rare diseases such as Tuberous Sclerosis Complex through emphasis on education, advocacy, research, and patient service programs. 

The founders of NORD were families that were struggling to obtain access to treatments and decided to advocate for their cause. This lead to the passage of the Orphan Drug Act in 1983. NORD receives funding from various sources, including corporate donations, foundation grants, and patient service programs.

THE PROGRAM

NORD’s Tuberous Sclerosis Complex Travel & Lodging Patient Assistance Program focuses on providing financial assistance for travel & lodging related to participation in clinical trials or furtherance of treatment for patients diagnosed (on under consideration for diagnosis) for Tuberous Sclerosis Complex. This includes financial support and concierge travel arrangements.

For additional information or, if you are in need of such assistance, please contact NORD at:

Phone: 203.616.4320, Fax: 203.349.3199, Email: TSCTravel@rarediseases.org